Dying leukaemia sufferer's final plea for east African donor

Kevin Kararwa

Kevin Kararwa

First published in News by , Reporter

A dying leukaemia sufferer's final hope rests with finding a suitable bone marrow before Christmas.

Kevin Kararwa, only 24, of Canterbury Road, Morden, is currently in hospital after a relapse of his acute myeloid leukaemia diagnosed in April last year.

After an intensive course of chemotherapy and a cord blood transplant during which he nearly died, the University of Portsmouth graduate suffered the relapse last month.

Since then, consultants at Kings College London where he is staying, say his last hope is if bone marrow cells from a un-related donor can be found.

Mr Kararwa's mother Veronica, said he desperately needs help.

She said: "I can't explain what it is like to see your own son suffering like he is. The pain is too much, I just want to see my son as he was and sometimes I just want to fly away. After the last operation we didn't think it would ever come back, we thought he was safe."

The psychiatric nurse has called on people from east Africa and places such as Mr Kararwa's native Kenya to help.

She said: "We need people from the east Africa to come forwards and be donors. People seem to think they need to go through surgery to be a bone marrow donor but you don't, its a simple series of injections. There is a lack of awareness among the community. I'm praying Kevin will get the donor he needs, but if he doesn't I hope by encouraging people to come forwards, others can be saved."

The world register of 22 million potential donors has been checked but a suitable match has not been found for Mr Kararwa.

Bone marrow consultants are considering his brother who is a half match but it is a procedure that comes with high risks, and being only a half match means that there is just a ten per cent chance of success.

Beverley De-Gale, co-founder of the African Caribbean Leukaemia Trust, (ACLT) fears Mr Kararwa will not come out of hospital alive unless a donor is found as soon.

She said: "Kevin is in a bad way. He needs a donor now or I'm not sure he will ever leave the hospital. Only a very small percentage of donors are not white, and in order to be a bone marrow donor for him you have to be from a similar ethnic background. There is a lack of awareness among the ethnic groups we need most as donors. There is also an element of apathy."

The family are members of the Presbyterian Church of East Africa, which has Sunday services at St Matthews Church, Dyson Road, London E14 4JX.

On Sunday 24 November at 2pm the ACLT Address the congregation about leukaemia, Kevin’s diagnosis and subsequent treatments and the severe lack of potential donors from within the East African Communities.

If you want to help or find out more call 02082404480 or visit www.aclt.org

 

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Comments (3)

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5:13am Fri 22 Nov 13

LI-WEN0420 says...

I would like to provide a medical source about bone marrow , you tend to contact with Tzuchi foundation and hospital ,which can support you to find a matched marrow bone. and find more about their information. (please never give up)

http://app.tzuchi.co
m.tw/tzuchi_en/Inter
national_Medicine/De
fault.htm
Address: No. 707, Sec. 3, Chung Yang Rd. Hualien 970, Taiwan, R.O.C. 970
Tel: 886-3-856-1825 ; 886-3-857-8600 (manual registration);
  886-856-2016 (medical consultation)
Fax: 886-3-856-0977
Email: yilee@tzuchi.com.tw
Web: app.tzuchi.com.tw
I would like to provide a medical source about bone marrow , you tend to contact with Tzuchi foundation and hospital ,which can support you to find a matched marrow bone. and find more about their information. (please never give up) http://app.tzuchi.co m.tw/tzuchi_en/Inter national_Medicine/De fault.htm Address: No. 707, Sec. 3, Chung Yang Rd. Hualien 970, Taiwan, R.O.C. 970 Tel: 886-3-856-1825 ; 886-3-857-8600 (manual registration);   886-856-2016 (medical consultation) Fax: 886-3-856-0977 Email: yilee@tzuchi.com.tw Web: app.tzuchi.com.tw LI-WEN0420
  • Score: 3

10:34am Fri 22 Nov 13

Ongwen says...

I can contribute if tested and found matching but very far in Uganda.
I can contribute if tested and found matching but very far in Uganda. Ongwen
  • Score: 2

3:35pm Thu 28 Nov 13

LI-WEN0420 says...

Hi , I am glad to see your response. In pass these few days , I thought that how to help you contact with Buddihst Tzu Chi stern cells centre. I sincerely hope you will be well everday. if you need more information or help , please let me know I will try to do my best as possible as I can.
You can consider this way can help you.

http://tw.tzuchi.org
/btcscc/english/ask/
04.htm
http://tw.tzuchi.org
/btcscc/english/inde
x.php

1. The Purpose

In order to help the staffs in the overseas offices that work for social care cases, when the patient needs help for unrelated bone marrow match. Make sure that overseas staffs obtain the corresponding information to expedite the procedure with the BTCSCC staffs, avoid unnecessary e-mail, phone call and fax.

2. The information requirements and operating procedures for matching process:

(1) Please ask the patient family members to provide the patients HLA (Human Leukocyte Antigen) typing including at least three loci: HLA-A, B, and DRB1. Resolution not designated.
(2) Provide the information of patients attending physicians contact phone, fax and e-mail to the BTCSCC staffs, in order to contact directly with the attending physician for corresponding assistance.
(3) If the BTCSCC staffs receive the referral information, according to " the principle of preliminary matching process " , they will reply the matching result to the attending physician and overseas staffs within one working day.

3. Contact Information with the BTCSCC:
E-mail: btcscc@tzuchi.org.tw

Tel: 886-3-8561825 Ext: 3518/3519/3216 Fax
: 886-3-8574324
707 Sec. 3, Chung Yang Rd., Hualien, Taiwan 970, R.O.C.
Hi , I am glad to see your response. In pass these few days , I thought that how to help you contact with Buddihst Tzu Chi stern cells centre. I sincerely hope you will be well everday. if you need more information or help , please let me know I will try to do my best as possible as I can. You can consider this way can help you. http://tw.tzuchi.org /btcscc/english/ask/ 04.htm http://tw.tzuchi.org /btcscc/english/inde x.php 1. The Purpose In order to help the staffs in the overseas offices that work for social care cases, when the patient needs help for unrelated bone marrow match. Make sure that overseas staffs obtain the corresponding information to expedite the procedure with the BTCSCC staffs, avoid unnecessary e-mail, phone call and fax. 2. The information requirements and operating procedures for matching process: (1) Please ask the patient family members to provide the patients HLA (Human Leukocyte Antigen) typing including at least three loci: HLA-A, B, and DRB1. Resolution not designated. (2) Provide the information of patients attending physicians contact phone, fax and e-mail to the BTCSCC staffs, in order to contact directly with the attending physician for corresponding assistance. (3) If the BTCSCC staffs receive the referral information, according to " the principle of preliminary matching process " , they will reply the matching result to the attending physician and overseas staffs within one working day. 3. Contact Information with the BTCSCC: E-mail: btcscc@tzuchi.org.tw Tel: 886-3-8561825 Ext: 3518/3519/3216 Fax : 886-3-8574324 707 Sec. 3, Chung Yang Rd., Hualien, Taiwan 970, R.O.C. LI-WEN0420
  • Score: 0

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