A Wimbledon man with a cancer so rare that it is usually only found in pregnant women says he is just trying to live every day as it comes.

Sean Stuart was diagnosed with a choriocarcinoma at the end of December 2019 following surgery to remove a tumour on his left adrenal gland.

At the time, a doctor told him that he may very well be the only man in the UK, or even the world, with the condition.

"It was a bit of a whirlwind to get the news," he told the Wimbledon Times.

"But you just have to take it on board and try to figure out where you go from there.

"Unfortunately it's a very rare cancer so there's no real funding or research, because it might only happen once every 50 years."

The father-of-three started a course of chemotherapy on February 3 and his markers have fluctuated ever since, at one point even reaching 56 (where five is what he and the doctors want it to be under).

After a bit of a dip, it began to rise again and as of March 2 it sat on 23.


"This might suggest that the chemo isn't working as well as we hoped," Mr Stuart added.

"When you are doing chemo you have good days and bad days.

"You'll have four days out of seven you are right as rain and then the other three you feel awful."

He says his three adult children have all taken the news in stride.

"We've been honest with them," he said.

"They are all living away from home with university and stuff so we just try and keep them in the loop as much as possible."

What he now needs is a CARIS Molecular Intelligence Profile.

This breaks down a particular cancer into its most molecular structure. From this it is hoped that other treatment options will come to light.

But it doesn't come cheap, which is why he set up a GoFundMe page to help cover some of the costs.

"We are in uncharted territory," he said.

"It's a little bit scary in that sense and there are certainly positives.

"Treatment can be expensive and it mounts up really quickly. We just don’t know where it’s going to take us."